Blessed Are The Cheesebrains

My Experiences as a Mum and Wife of Dyslexics

Does Dyslexia Exist? What Do You Think of The ‘Dyslexia Debate’?!

This week I was asked to take part in a debate on Mumsnet with Professor Julian Elliott whose new book, The Dyslexia Debate, has created a certain amount of controversy in the news recently!  Many newspapers and websites have picked up on the pre-launch blurb (designed to create interest and sell books) to publish a range of sensationalist stories:

I’m the sort of person who likes to look at the evidence for myself and make my own mind up, and so I  look forward to reading the book when it’s published (and perhaps even reviewing it here on Cheesebrains!).  I’d be particularly interested to find out what Professor Elliott’s recommendations and conclusions are, and whether his book is actually trying to further our understanding of dyslexia rather than just attacking the ‘dyslexia community’, as it appears from the news.  I’d also suggest that dyslexia campaigners and charities have a very good understanding of what the condition really is (and that we may even agree on some of his points), and that it’s education and research/science that hasn’t kept up!

I am, however, one of those ‘middle-class parents’ being slated in the press and can speak from experience and so here’s my side of the debate.

 

7 Comments »

Dyslexia and Me | Trials and Triumphs: The Dyslexic Experience

A great idea here from another dyslexia blogger to raise awareness of the related condition – Irlen Syndrome (or Visual Stress).  Screening for this seems to be fairly common in schools now, and many children are given coloured overlays (and some like my daughter and husband also have coloured glasses), but worryingly they seem to think of it as dyslexia and not a separate difficulty.

This is something else I blog about and is an issue close to my heart and that of my good friend, Celia Stone (who, as well as being one of the creators of Beat Dyslexia and Beat Dyscalculia is a Director of the Irlen Institute)

Dyslexia and Me | Trials and Triumphs: The Dyslexic Experience.

4 Comments »

Petition For Dyslexia Testing on NHS: Please Sign!

Have a look at this petition – I think it’s valid and very worthwhile, and how many of us have struggled to get a diagnosis and with getting school to take our concerns seriously?  And I’ll be writing more on this issue shortly……

I’ve signed it – will you?

http://www.change.org/en-GB/petitions/secretary-of-state-for-education-and-secretary-of-state-for-health-make-dyslexia-diagnosis-easier-for-children-to-get?recruiter=87397133&utm_campaign=signature_receipt&utm_medium=email&utm_source=share_petition

4 Comments »

Dyslexia Awareness Month: It’s Personal

October is Dyslexia Awareness Month and I came across this story on the web – and it sounds like things are very similar in the US to here in the UK.  Let’s hope we get to see this film (Dislecksia: The Movie) in the UK soon…….

Dyslexia Awareness Month: It’s Personal.

Leave a comment »

A Song From The Heart

This Summer my daughter spontaneously wrote and performed a song for me.

She’d had a really hard time with her Year 5 teacher who didn’t really seem to understand dyslexia or the need to build children’s self esteem and encourage them with positivity. In the end we just agreed that it was something she was going to have to grin and bear and get through as best she could. We joked about it and I gave her a reward at the end of the year for surviving and getting a good report. The song told me that, although it had been a difficult time for both of us, I must have been doing something right : )

20130924-161624.jpg

Mum’s Song
You helped me through some lows.
By picking me back up again.
You’re the one for me.
Mum. Mum. Mum. Mum.
Mostly with being dyslexic.
Because of some teachers.
You’re the one for me.
Mum. Mum. Mum. Mum
M-Y M-U-M. Mum

Leave a comment »

The Surprising Thing About Dyslexics Is That They’re Constantly Surprising!

One of the great things about living with dyslexics is that they never fail to surprise you (I’m sure this happens in other families as well, but I don’t have experience of them….) This Christmas both my husband AND daughter have surprised me for very different reasons.

Firstly, my husband got a tablet for Christmas. He needed one for work (and I was keen for him to have something that he could carry around with him that might help him to be more organised, particularly after the recent fiasco when he forgot to pick our daughter up from school, but that’s another story….), however he also announced that he’d like to be able to use it for reading books. This in itself wasn’t the surprising thing as my husband is quite an avid reader (although with a fairly narrow repertoire of science fiction and science fantasy, and is most comfortable reading young adult fiction). And he’s also a very slow one: He tends to average only a couple of pages a night and so it can take him 6 months to finish a complete book, and he’s been reading the same science fantasy series for the last 25 years! However, what did surprise me was that as soon as he’d got a reading app he started searching for free books that he could download, and plumped for a selection of classics like The Scarlet Pimpernel and Sherlock Holmes. And first on the list for him to read was Pride and Prejudice! Now this is one of my all time favourite books and my husband has enjoyed the various TV and film adaptions (so much so that on several occasions I’ve caught him watching a repeat of Colin Firth and Jennifer Ehle on some obscure channel!), but I never ever ever in my wildest dreams imagine that he would read it himself! But not only that, he finished it in less than a week, got at least some of the wit, and enjoyed it!

Secondly, my daughter was chosen to play the main part in her school’s Christmas production. Again, this in itself, wasn’t too much of a surprise as her ambition is to (follow in the footsteps of her dyslexic hero, Kara Tointon) and become an actress, and she was determined to get a part. What was astonishing was the fact that she seemed to learn and remember the part by complete osmosis without any effort at all! And in fact, she learnt the whole show off by heart, so much so that she mouthed everyone’s words as they said them and could prompt them if they missed their cue! Incredible! And I still don’t know how she did it!

I had been equally pleased and apprehensive when she got the part as short term memory is one of her main weaknesses and we have had endless traumas with learning things like times tables and spellings, but somehow she managed to bypass this completely and commit everything to her long term memory, I presume because of the actual physicality of acting and not just reading and saying the words.

Her next challenge is a small part in Romeo and Juliet at the local High School in February, so watch this space….

3 Comments »

Steven Spielberg discusses his dyslexia for the first time ever.

Lisa Kendrick:

I have a theory that creativity goes hand in hand with dyslexia and Steven Spielberg is yet another example to back up my theory. I hope to blog more about this soon……

Originally posted on The Brain Gym Dublin:

View original

Leave a comment »

Mumsnet Blogfest: Can Blogging Change the World?

I went along to this session at Mumsnet Blogfest on Saturday hoping that it would inspire me and show me that blogging can change the world: I blog about dyslexia and one of the reasons I do that is because I think that things do need to change and that the more people talk about it and work together to highlight the issues then perhaps, maybe, something might get done. That’s why I think initiatives like dyslexia awareness and information group, Parent Champions, are important and why I supported the British Dyslexia Association’s recent e-petition calling for mandatory special needs training for all teachers. But the big question I wanted answering was should I be doing more?

It turned out to be a very poignant and topical session with the day being declared Malala Day (in honour of the Pakistani teenager who was shot in the head for campaigning about education for girls) and Panel chair, Rosie Charles from Save The Children started by encouraging everyone to sign the online petition for Malala to be nominated for the Noble Peace Prize.

What I took away from this panel discussion (and from the day as a whole) was:

  1. the fact that blogging in itself can’t change the world, but that together with other social media it is now a key element in raising awareness, gaining support and momentum, mobilising people and promoting change.
  2. It’s a particularly useful tool for women to have a voice and be heard and is helping to make feminisim and other previously marginalised causes mainstream
  3. Things are still developing and evolving but there are opportunities to be had
  4. Women have a variety of diverse voices and want to talk about everything from knitting and sewing, to science, business, politics, feminism and human rights – whether we have children or not
  5. As a blogger I can be part of a wider debate and a force for change

Here’s my summary of the panel discussion:

The panel consisted of Rosie Charles from Save The Children, Naomi McAuliffe from Amnesty International, Holly Baxter from The Vagenda, Lynn Schreiber from Salt and Caramel, feminist writer, Natasha Walter, and MP Stella Creasey.

Naomi said that blogging was a key tool for the activists and prisoners that Amnesty helps and supports.  She said that blogging definitely has it’s place and that it is hitting a nerve with certain regimes.

Blogging is important in the fight for human rights:  It gets information out that people may not generally have access to, however it’s not the full story, because in places like Syria, only 20% of the people have internet access.  However, it’s certainly something that repressive governments feel is a threat and that they’re clamping down on – in Syria, 2 female bloggers have been convicted of spying simply because they’ve been blogging about what’s happening in their country.  Revolution happens because people are out on the streets but blogging gets the message out to a wider and worldwide audience and particularly to women who might not be allowed out and to join in and for whom it might be too dangerous.  The problem is though that having access to this information makes us feel like we’re involved, but actually we’re just witnesses and can’t be involved – it doesn’t actually make any difference if we change our avatar to show our support for a particular cause.

Blogging is very accessible and can be the only way to get your voice heard when there’s no freedom of expression, but it is more powerful if it’s combined with other activism as well.  A blog itself doesn’t change the world but it can play a part.

Holly explained how Vagenda, which works to expose negative and cynical content in women’s magazines, took off in just a week (and gained 60,000 followers in just 24 hours!), and that the power of social media has allowed them to take on and challenge the mainstream media in a way that they wouldn’t normally.

They only launched their site when they had 20 articles ready and were confident about their theme, niche and remit.  They also made sure that the site had minimum clickability (i.e. you click on an image and get straight to the article) and maximum shareability (i.e. a third of their content is images which can be easily shared).  They then used  social media like Twitter and Tumblr to specifically target teenage girls.  From there everything grew quite organically (even without social media at first).  Her tip  for success is to get your content right and know the right social media for your demographic.

Lynn has helped Mumsnet with awareness campaigns or miscarriage and rape awareness and says that blogging gives people a voice who haven’t had one before and that it can be very powerful.

For Lynn blogging is about raising awareness: She blogged about reproductive rights in Kenya where women walk for 2-3 hours to clinics for reproductive implants only to get there and find that they’ve run out.  By blogging she could let people know about the need to help women take control of their reproductive health and in turn make decisions about life and families and give them choices about education and work and play a part in lifting them out of poverty.  She wanted to highlight the fact that this is something that isn’t an issue for us and that we take for granted – we just make a decision and that’s that, however, many of these women particularly want an implant so that they hide the fact that they’re using contraception from their husbands.

By blogging about these issues and raising awareness pressure can then be put on governments around the world to get involved and do something about it and in this case there was a summit where various governments pledged money to help.  Blogging didn’t bring about the change, but it helped put it on the agenda when decisions being made.  It can be used both to help lift whole counties out of poverty and hold people to account for their actions.

In particular, women writing for women about women is very powerful.

Natasha said that she was a very late adopter of social media and that she had been very sceptical about the internet and women’s rights.  She said that she had initially found it to be a hostile environment, but that had changed over the last couple of years (since the publication of her book, Living Dolls) and that she felt that feminist debate was now mainstream and no longer marginalised.  She was particularly inspired by how young women were making feminism concrete and real and how bigger brands and sites like Mumsnet were bringing the debate to the majority.  In particular, she works with a charity for refugee women and felt that blogging was vital in helping them make sure that the voices of marginalised women were heard because the mainstream media weren’t necessarily interested in those stories.

She said that if we look at history of feminism, it has always worked on different levels, from the local to the political, and that it’s a process that has to take place in all of society.  We need people to join in the conversation and collaborate and make it more powerful so that the media and politicians will start to take notice. We all have a part to play in that process and blogging and social media can help us do that.

Stella said that she didn’t blog, but did use other social media in her campaign work.  She said that it allows her to connect and interact with people but that she felt that we should still be doing that in the real world as well.  She agrees that social media is helping to rebalance power, make sure that people are heard and provides a challenge and accountability for authority, but got annoyed when people said that the Arab Spring was created on Twitter: she sees it as a tool that can mobilise people to great effect, but that it was what they were writing that was powerful, not how.

She talked about a particular case in her constituency of Walthamstowe where there’s a doctor who refuses to offer any sort of contraception.  Traditionally as an MP, people would come to her and complain and then she would talk to the health care trust and pass on their complaints, however, their response is that people can travel to another area to get contraception.  So instead, she’s  working with group of women to start a campaign and a conversation about health care issues as a whole, which includes this as problem as one element, but covers a whole range of needs and women.  She sees what she does and how she uses social media as being about getting people engaged in the process, working together, and contributing to changing lives rather than government.

Key Tips 

  • Smaller campaigns need to collaborate with bigger platforms like Mumsnet or bigger name charities to get themselves heard
  • The traditional media is now on the back foot and is looking for new audiences and so there are opportunities to get stories covered if you have a good hook and a particular angle – for example, editors will be more receptive to a story about new technology rather than a campaign by a ‘mummy blogger’.
  • Make use of big stories and trends like women in sport and disability sport from this year’s Olympics to get your story heard
  • Raising awareness in itself doesn’t necessarily make things happen – you need to choose your battles and think strategically and make sure you put your spin on everything you’re doing
  • Be clear about what you’re asking for rather than just complaining – it’s easier for someone to take on a cause and make something happen if you have a clear proposal and people can understand how you want to make a difference, what the story is and what change needs to be made.
  • The mainstream media still has a role to play, particularly where there are legal implications to a story and where people need to be anonymous.  Make use of their investigative skills

Campaigns to Follow

2 Comments »

Muddled (on the path to better reading). | Three Ring Circus

Muddled (on the path to better reading). | Three Ring Circus.

Another mum (in Australia) who has discovered Irlen Syndrome and the benefits of coloured lenses and overlays for her child.  When it works, it’s almost like magic!  My daughter is waiting for her latest lenses (her 4th colour since she was diagnosed, age 5) – she’s gone from red to blue to paler blue to a more purpley blue, and each time she’s had a new colour we’ve seen her blossom and grown in confidence and ability and and make huge leaps forward in her reading and writing ability – last year she went up 3 reading levels at school (to become a free reader) and became the first person in her class to get a ‘pen licence’ (meaning that her handwriting was good enough to move from using a pencil to using a pen).

I can’t wait to see what happens this time……

1 Comment »

Lisa Kendrick:

And from Canada this time, more of the same about how early diagnosis (or not) can affect children with dyslexia and turn their ‘learning difference’ into a ‘learning disability’. It’s clear that something needs to be done in schools to address how we teach so that we include (‘inclusion’ is ironically another current buzzword in schools) everyone no matter how they learn.

Originally posted on Rants & Raves by Dyslexia Victoria Online:

When I talk to parents with children who they suspect have Dyslexia I generally hear the same story. Problems with letters, numbers, counting and words when they were four or five. They couldn’t print well but often very artistic especially for their age. Sometimes they started talking later than other children and had speech difficulties such as lisps, mispronunciation of words more than other children, couldn’t remember simple words so would say “thing-a-ma-jig”, “whatcha-ma-callit” or use the wrong word. But they were also intelligent and quick learners with other skills and knowledge such as building things with legos, athletics, art projects, singing, dancing, telling stories, remembering events or movies in extensive detail or making observations about things that is way beyond their years. They loved to learn, asked endless questions about everything and were excited about going to school.

When they enter school they continue to have problems with letters…

View original 1,067 more words

Leave a comment »

Follow

Get every new post delivered to your Inbox.

Join 303 other followers

%d bloggers like this: